Madison
has a full-time aide (aka “Instructional Assistant”) who is just wonderful.
Her name is Andrea and she works very well with our little girl. The year
got off to what we thought was going to be a rocky start when the district called us and said they had no aide for Madison
the first day of school. However, she started the year with a fantastic substitute
aide, and then Andrea appeared. Andrea has a very special connection with Madison,
and expects the world from her. Andrea is quickly learning how to adapt things
“on her feet” for Madison - and is coming up with ideas I never would have thought of. We knew that if Madison did not get a great aide, that might really affect her experience in Kindergarten. We fretted about this all summer. However,
with lots of prayers and hope, it all seemed to work out.
Madison
has so much to say now! As she’s falling asleep at night, we are hearing
her recite her ABC’s and count past 20. She doesn’t always do these
things on command, but now we know she CAN do them. We’ve always said that
we have high expectations and goals for this little one, but I’m afraid they were not high enough. Honestly, I would never have thought she’d be SAYING her ABCs at this point. She has a voice, and it is beautiful! Being around all of
these walking, talking 5 year olds has done wonders. Not to mention, Madison
has an incredible will and has been working so very hard.
I was
able to attend Madison’s very first “Parent-Teacher Conference”. This
was not a crazy IEP meeting with, like, 20 people trying to tell me about my girl. This
was just the teacher and me talking about Madison. It was SO refreshing. I was able to see on paper, on a typical little report card how Madison is doing.
I can’t tell you how amazing it felt to see:
Madison
knows all of her shapes.
Madison
knows all of her colors.
Madison
knows all of her letters.
Madison
knows all of her numbers up to 10.
We knew
all of this, but so did somebody else! And it wasn’t a specialist, it wasn’t
a psychologist - it was “just” a teacher. Just a regular, wonderful
Kindergarten teacher.
Which
brings me to Mrs. Robertson. Mrs. Robertson is the best Kindergarten teacher
you could ever imagine. She’s incredibly organized and is just beautiful
with the children. She has embraced Madison, and Madison LOVES going to school. This is the same wonderful K teacher Savannah had, and it is so helpful to have this
past experience with the same teacher. She has her hands-full; the budget has
increased her student count and decreased her resources. But, she is still able
to reach and teach Madison.
Here’s
a rundown of Madison’s specialist. (This is incredible; read on...)
Cheri
is Madison’s Inclusion Specialist. She
comes to school about once a week to see how Madison is doing. She works with
Maddie’s aide and teacher, and gives them ideas on how to help her. She
helps to adapt Madison’s curriculum, and is kind of like Madison’s overseer.
She is an amazing resource and a very special person. I have learned so
much from her, and hope to continue to be able to work with her in the years to come.
Wendy
is Madison’s Adaptive PE Teacher. She
works with Madison once a week with another little girl named Annabelle who is in first grade. (Annabelle and Madison went to preschool together for a year.) She
does fun activities with the girls and works on Madison’s physical goals such as throwing and catching a ball. Savannah and her friend Emily help during this time, which is the most wonderful thing
I could have ever imagined.
Susan
is Madison’s Technology Specialist. I
haven’t written much about this yet, but Madison DID receive a communication device over the summer. Susan comes in once a week to work with Madison, the aide, and teacher on how to include the device into
the school day. Susan was instrumental in helping us get this device (named “Dyna”)
- more on that later...
Miriam
is Madison’s School Occupational Therapist.
She works with Madison once a week on school-related fine motor skills.
Carly
is Madison’s School Speech Therapist.
Madison works with her at least twice a week. Once with a small
group of children and once individually. Madison LOVES going to see Carly.
Judy
is Madison’s Physical Therapist. Madison
doesn’t see her at school, she sees her once a week at the CCS Clinic we’ve been going to since Madison was one
year old. Amy’s regular PT, Amy, is out on maternity leave (with twins!)
and we miss her dearly!!! However, Judy has been a special blessing to Madison
and Madison work incredibly well with her.
Sharlyn
is Madison’s “other” Occupational Therapist, also at CCS. Madison has known Sharlyn almost all of her life. Sharlyn
works on non-school-based fine motor skills, such as putting on/taking off clothing and bathroom issues. Sharlyn recently helped us get a special adapted toilet seat for Madison to use at home. We haven’t received it yet, but we are hoping it will help Madison become more independent in the
bathroom.
Jamie
is Madison’s private speech therapist.
Jamie has been working with Madison for almost two years now. Long story,
but Madison met Jamie as the school therapist in preschool. However, Divine Intervention
has brought Jamie to our home twice a week now. She works with Madison
on just about EVERYTHING.
Alice
is Madison’s Neuromuscular Re-Education Practioner. (Say that 5 times fast!) We were seeing Alice once a week,
starting about a year ago. However, we realized that Madison gets the most out
of this therapy when she has lots of sessions close together. So now, we see
Alice about every other month for 3-4 sessions at a time. I wrote a lot about
this in my last update. Can’t quite put my finger on exactly HOW Alice
helps Madison - you would just have to see her work to truly understand.
Kim
is Madison’s horse therapist. That
sounds odd doesn’t it? I haven’t written about this in a while, but
Madison has been receiving “hippotherapy” since she was two years old. Madison
has made incredible strides in her skills on top of that horse this year! This
is another thing I can’t really explain; all I know is that seeing Madison on top of that horse is incredible. She does things I could never imagined. For
example: she now puts her feet in the stirrups, stands up all on her own on top of that darn horse while we count to 100. Yes, 100. And so much more...
OKAY
- no wonder I’m exhausted!!! It is crazy to put all of Madison’s
“people” in writing. I didn’t actually realize she had so many
people working with her on a regular basis.
Teeth (yes, teeth again...)
Sadly,
this kid even requires an update about her teeth... Fortunately, since our last
update there have been no more cavities due to her missing tooth enamel. (YAY,
US!) However... Madison had a little
spell where she was falling A LOT and HARD for a month. During the month of September:
-Madison
fell at school and split her tooth in half. This required a trip to the dentist
and then the oral surgeon who had to extract all of the parts of this tooth while under sedation.
-Then,
while we were getting ready to go to her post-surgery checkup at the oral surgeon a week later, Madison fell off of the toilet
and knocked another tooth loose. Since we were on our way anyway, I through bloody-mouthed
Maddie in the car and the oral surgeon took that tooth out as well.
-About
a week later, Madison fell AGAIN (this time at home, we think - the kid falls A LOT so we kinda lose track) and chipped her
front tooth. Again, I jaunted her over to the dentist and fortunately this was
quick fix. They dabbed a little something-something on her tooth, smoothed it
out and it is fine...
Seriously. This all happened within a month.
Not
to mention Savannah’s dental “issues” this same month. All-in-all,
I think we had 7 trips to the dentist and 3 trips to the oral surgeon in the month of September.
Seriously.
Things Maddie Can Now Do That We All Take For Granted:
She
can cover herself with a blanket.
She
can take “just one” piece of cereal.
She
can use a cup. (Seriously - only one major spill about once a week!)
She
can get out of bed.
She
can put her socks on.
She
can say “I Love You” (which has recently been morphed to “I Too You”, but we totally get it.)
Random Side Note:
Interestingly,
Madison is very organized. Not something I was expecting from her little chaotic
body. If she sees something without a lid on, she immediately fixes it. If I leave my makeup out on the counter, she stands right up and puts it away (all
to the right spot, mind you!). Though she knows how to make incredible messes,
I would have to say she might even be a bit more organized than her big sister!
We are at a good place right now. Everything seems a bit harder than I expected, but this has been a very fun and exciting
time for our family. I feel some challenges coming up ahead, so I’m trying
to just stop and enjoy this moment.