Maddie is now 18 months old. I can't believe
how fast this little baby is growing up! Madison's latest, biggest milestone is that she can now pull herself into sitting all
by herself! The first time she did this was on December 9th, while Grandma was visiting. Not a huge milestone
for some, but for Madison, this was four months of hard work finally paying off. The therapists have always told
us that this is hugely important, but they never told us why... (And I'm kind of glad they didn't.) Statistically,
babies who are not able to do this by their second birthday will never be able to walk unassisted. I didn't know that
we needed to be concerned about Madison never walking, as most people told us that her walking someday, however late, was
a given. I guess it's good to not be fully informed sometimes...
She was fitted for "DAFO's" this month, which is
a special type of shoe, or brace, that will assist her while she is standing. She is standing a lot more now (when assisted
into that position and then leaning up against something), but her legs are horribly hyperextended. If she learned to
stand in that position, her legs could become damaged. The DAFOs will train her legs into the right position and make
it so standing is not painful for her. She also stands on the insides of her feet, and these will help with that also.
Savannah got to pick out the color and decoration of Maddie's braces, so big sister is quite proud of them!
Madison is also moving around a lot more these days. Though not technically
crawling, she has developed her own way to get from place to place, and it is quite clever. It's a combo scooch-roll-propel-sit
thing that's actually very cute! If she wants something, she can definitely make herself go get it. It takes her
a lot of time and concentration, but she doesn't seem to be too frustrated by that. We have finally had to start thinking
about child-proofing for this little girl!
Madison is also making a lot more noise lately. Once she started moving
more and getting herself into sitting, the babble floodgates opened and she is finally really making some good sounds.
Her first real word was "bubble" on November 4th. Kind of random, but she really likes bubbles! She is now consistently
saying "mama" (yay for me!) and has been witnessed to say "Grandma" (for Grandma Phyllis) and "Barbwa" (for Grandma Barbara).
She is understanding baby signs a lot, but still does not have the fine motor skills to make the signs herself.
Things we have learned:
Because Madison does not have a technical "diagnosis", it has been hard understanding
all of this. We have learned that she could still receive a diagnosis, but chances are the doctors will wait until she
is about three to see what type of progress she has made. We thought all possible diagnosis had been exhausted, but
in some conditions, only time can tell. From what we have learned, I do believe that she will eventually be diagnosed
as having a mild form of Ataxic Cerebral Palsy. From everything I read about it, it fits Madison to a tee. Some
therapists have also alluded to this diagnosis. It's not that we want our child to have a certain type of label, and certainly
not that one, but a diagnosis would just give us some type of closure to this open-ended mystery in Madison's life;
we'd have a better idea of what we are dealing with. Also, to continue to receive the services that she is currently
receiving after the age of three, she will have to have more of a solid diagnosis. We are meeting with the neurologist
and geneticist again in February, and they might be able to give us more information about this then.
